A diagnosis of rare bone marrow failure disease can confuse and overwhelm patients and their loved ones. There is much to learn, and this website provides the information you need to know. We have assembled the latest and most accurate information available on bone marrow failure disease. And since people learn in different ways, we present a variety of learning experiences, including a range of online resources with disease-specific features, interactive learning programs, educational videos, print booklets and newsletters and live regional patient and family conferences.
Learning is a process, so don’t feel pressured to learn everything at once. There’s a lot to digest, so be gentle with yourself as you read through our materials. Take notes as you go along and ask your doctor to clarify any questions you have based on what you’ve read.
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